links for 2008-06-28

[manually posted]

[NY Times] Parents of Newly Diagnosed HF Autistic Children Find Chip Did Not Fall Far From Tree

Your Child’s Disorder May Be Yours, Too [NY Times]
[A]fter Phil and Susan Schwarz received a diagnosis for their son, Jeremy, of high functioning autism, they began to think carefully about their own behaviors and histories.

Mr. Schwarz, a software developer in Framingham, Mass., found in his son’s diagnosis a new language to understand his own life. His sensitivities when growing up to loud noises and bright light, his own diffidence through school, his parents’ and grandparents’ special intellectual skills — all echoed through his and Jeremy’s behavior, like some ancient rhythm.

His son’s diagnosis, Mr. Schwarz said, “provided a frame in which a whole bunch of seemingly unrelated aspects of my own life growing up fit together for the first time.” (more)

Well …, duh!

Not to sound too snotty about geek parents with a fresh diagnosis of high-functioning saying, “he’s not weird, he’s just like me”, mind you. OK, maybe a little. I just keep meeting parents singing this refrain.

Which is just more grist for the notion that all this identified autism is not an fresh and growing epidemic. We are just developing the perceptions that places this particular suite of neurological conditions both in sharper focus and in a larger perspective of our behaviors. Especially when more and more people realize that these behaviors might actually be rather familiar after all. It just has a label now. One that people are really sensitive to now.

links for 2007-07-14

links for 2007-04-14


299.80 is the DSM IV code for Asperger’s Syndrome (AS). There has been some non-peer reviewed press on AS (like Wired 1, 2) but we have been becoming familiar with it on a personal basis.

Some time ago (little less than a year) Ian was identified with AS and became eligible for special consideration from the school district before hitting Kindergarten .

Not long thereafter I was identified with Asperger’s as well. (Block makes chip, which does not fall far.)

So, we have been dealing with that. [As an aside, A.J. Mahari has a nice little rumination on Adult Asperger’s Syndrome that I will not attempt to expand upon. For now at least.] With my personal history of identifications and interventions I must say that we’re starting to get pretty close to whatever it is for me. As a second aside, if things have seemed a bit ‘unstructured’ around here, this is probably one of the main reasons. I realize I owe several (many) emails, letters, phone calls, book returns, and ghu knows what else to many of you. I’ll try to get on that, now that I have decided to talk about this.

The nice thing for Ian is that we have a good idea how to help him. There will be no reason for him to be excluded from any activities. These are good things…